Blog posted here.
Blog posted here.
Yesterday started out with some excitement. Not the fun kind of excitement though. I was asleep when Danny came downstairs to tell me he needed help. Well, I've been mom to a girl with diabetes and epilepsy long enough to know that's never good.
"Help with what?" I asked.
"I know that, but what's wrong with her?"
"She fell down."
At that point I was frustrated as well as worried. I could guess all that, I wanted to know what was wrong with her - what caused the falling down. Was she still seizing? Did she hurt herself when she fell? So I stopped asking questions and rushed upstairs. I grabbed boxes of juice from the kitchen in case she was low and headed up the the hallway outside her bathroom. That's where she always falls. Out of the last half dozen seizures at least, they've all happened in or just outside her bathroom.
No one could find her blood sugar meter and although she was conscious her brain was not at all working, so she wasn't any help. And she didn't want to drink the juice. I kept telling her she had to drink it and she kept sitting it on the floor and crying "I'm trying". I made her drink it but actually, it really didn't make that much difference. If it was an epileptic seizure, her blood sugar had nothing to do with it. If it was diabetic, by that point her liver would have released all it's sugar and she'd be fine for a little while. But it's just one of the few things I can have any control over to try to help, so it makes me feel less helpless. And it certainly doesn't hurt.
Eventually we found the meter, and she was high which really told us nothing except that she wasn't in danger. The next check a few minutes later had dropped a bunch. I helped her down to the couch, got her some things she needed and sat with her till she fell asleep.
A few hours later she came to me begging to go to school. She swore it wasn't because she wanted to see her boyfriend, but I had my doubts. Still, she seemed ok, so I discussed with Danny and took her to school. And worried.
It was grocery store day, so I headed for the store in town that participated in the Give Back program, and on the way realized how hungry I was when I drove past my favorite Lawrence restaurant, Jade mongolian grill. I decided I deserved to have some lunch there.
They decorate with reproductions of the statues they found in the the massive and amazing tomb of the first emperor of China. This little horse is in the entry way. I like him. (He makes me think of Mulan, but don't tell anybody)
This was my appetizer - egg drop soup, some noodle, green beans and mushrooms. I didn't take a picture of my tasty stir fry. And yes I know I'm eating out way too much lately.
I realized while I was bringing the groceries in that most of the horrible snow had melted, and I could actually see a bunch of muddy ground. That was good and deserving of being recorded in pictures.
Eventually it was time to fetch the girl from school. Her feet were hurting a lot and I didn't think she was going to make it into the house. We were trying to decide whether or not to go to the ER (we all hate the ER ordeal) and decided to wait a little bit till Danny was home to make a decision. H was on the way to do something in the kitchen when she gave up and laid down on the floor. At this point I was pretty sure a trip was going to be the best choice. No one wants to go, but even worse would be to send my kid off walking around on a fractured foot.
Danny got home and it didn't take much discussion to realize she should get checked out, so I brought the well used crutches out of the garage and helped the girl get out to the car and the two of them took off for the hospital. Soon I got a text that it was pretty empty and they were about to head to radiology which was very good, and not too long after that they called to say they didn't see any fractures - what a relief! The daytime guys would double check the films and call us if they saw anything, but we just needed to make a follow up with the primary doc, keep her feet iced, and give her drugs when she wasn't at school.
All's well that ends well, right?
While I was at home waiting and trying not to stress, I worked on my little book for this winter.
And that was my long day with lots of pictures.
Today hasn't been nearly as eventful. It's noon and I haven't even left my house. My brother just called though, so I'm about to call him back. We are going to talk about our end of the year trip to Disney World. Man I hope Hannah can handle that without any medical emergencies. So far we've only had one big vacation since she's had health issues, and she did manage to have a seizure and fall and need medical attention during that. Because she snuck out to go to the beach really early while everyone else was still asleep. !! I'll worry about that later though. I'm ready to think about some happy things. Like Disney World.
I was inspired by Elise Blaha (whom I have been inspired by many times, I must say) to take a picture with my iPhone every day and keep track of them with the (free) Project365 app. I didn't get started until about a week and half in, but I've been doing pretty good since. In fact, I've been taking more than one shot a day and today I had the idea to post some of them here.*
Hannah had the day off school (to honor Dr Martin Luther King), so I took her to Topkea to do a few fun things we don't have here, including the mall. While we at Charlotte Russe, she was trying on things and started to have big low blood sugar jerks. "Are you low?" I asked and before she could answer or I could tell her to sit down an employee who had been helping her with the dressing room asked if she needed a snack and ran to get her some candy she said they had at the register. Now *that* is some impressive customer service. When we were checking out I asked if they had customer comment cards or anything and they did not, but Hannah and I are going to check the website and see if we can say how much we appreciated them some way.
When the shopping was done, we headed out to meet up with Alan at my favorite restaurant in Topeka, El Charro. The have tasty chips and salsa, and the Polo Loco with mushrooms is the best ever. They make amazingly good mushrooms.
The next stop was meant to be the amazing Topeka Public Library, but silly us, it was closed of course. Very sad. H and I both love libraries. So we headed over to Alan's for a while, and then I drove us home through the worst, scariest fog I have even driven in. We were both really happy to be home.
*Why do I find myself thinking "Oh, don't write too much, don't post too many pictures - people will be annoyed. Or at least bored." That's just silly. I need to stop listening to that voice. Really. I love blogs where people post lots of pictures. And/or write lots of words. I know I'm unique and all, but I'm sure I'm not the only one.
Back in the olden days there was a discount store called Venture. They had one entire wall filled with bags of their own brand of candies and bagged treats, all two bags for a dollar. The only ones I cared about were the JuJu coins. The taste, the texture, the level of gumminess - man I loved them and every time I went to Venture I bought some.
Eventually I moved to Lawrence where there wasn't a Venture, and so when I'd go to visit my mom I'd stop by the Venture on the way and buy a few bags. I'd take one in the house to share my many roommates, and hoard the rest at home where I'd try to make them last till I went to Kansas City again.
After Walmart moved in, Venture went out of business. Sad on many levels, but mostly because I could never ever find any kind of JuJu candy that was quite the same as Venture's coins. Very sad. Tragic almost. But I always kept looking.
Last week Alan and I were at a mall in Topeka and stopped by the big bulk candy store. I saw lots of round red juju somethings, but none of them looked or smelled just right. I wanted to try tasting one of each to check, but they frown on that so look and smell was all I had to go on. In the corner I saw a batch of round red candies that looked like they might be right. They were labeled Red Raspberry Dollars, and they smelled exactly right. I bagged up a couple scoops of them, still unsure, and Alan bought them for me.
We were walking around the mall and Alan asked if I was going to try them. I was hopeful enough to make me nervous, so I was putting it off. But I tried them and they were exactly right! My long lost beloved JuJu Coins - oh so delicious.
Now they're all gone. I don't like much candy, but man I like those. I know there are more waiting for me in a mall in another town though, and even though I won't go there often, I know I can whenever I want and that's good. It's a good thing.
Wello hello 2010.
Please behave yourself.
I have big plans for myself in 2010. Most of them will be helped along if I can just keep this in mind:"The longer I live, the more I see that I am never wrong about anything, and that all the pains that I have so humbly taken to verify my notions have only wasted my time."
Said by George Bernard Shaw in the recent olden days, but super true still. Not just for me and George but for everyone. I'm going to try to trust myself more this year and not to the cranky voices that argue with the true one.